Rescue Ichthyosis Patients - Giving Hope To Life

What is ichthyosis?
Ichthyosis is a family of genetic skin disorders characterized by dry, scaling skin that may be thickened or very thin. The prefix "ichthy" is taken from the Greek root for the word fish. Each year, more than 16,000 babies are born with some form of ichthyosis. A study has determined that approximately 300 babies are born each year with a moderate to severe form of ichthyosis.  Ichthyosis affects people of all ages, races and gender. The disease usually presents at birth, or within the first year, and continues to affect the patient throughout their lifetime.

What are some of the problems associated with ichthyosis?
Besides the common scaling condition of the skin and depending on the severity, there may be associated psychological symptoms due to the abnormal appearance of the skin. Ichthyosis is disfiguring for most affected individuals. In addition to the numerous medical complications like dehydration, infections, chronic blistering, overheating, and rapid-calorie loss, patients with ichthyosis are subjected to psychological issues. Patients are often ostracized and concerns of isolation, low self-esteem, and depression are common due to the appearance of their visible, chronically shedding skin.

What can I do to help?

The Home of On Hong Limited is an approved charitable institution(IRD ref no.91/16948). We are a free, independent non-profit organization. many other countries, we do not benefit from government aid.This means your support is even more crucial. Financial donations from donors like you make our project free! Your donation will be used to support the rescue and treatment of seriously ill patients and to help find a cure for ichthyosis. Patients need you!